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Grateful to celebrate another year of life with loved ones! My birthday was a whirlwind of

Rare Doesn’t Mean Alone.

Supporting and uplifting the community affected by sickle cell, transplants, and rare diseases.

Meet Genesis Jones

Genesis Jones is a powerful advocate for rare diseases and mental health. As a sickle cell warrior and post-transplant survivor, she founded the Rare Resilience Alliance and Rare & Radiant Consulting to highlight often-overlooked stories. Approaching graduation this fall with a master’s degree in Clinical Mental Health Counseling, Genesis combines her academic training, personal experiences, and deep faith to educate, advocate, and inspire. Through strategic partnerships, public speaking, and resource development, she empowers individuals and communities to navigate chronic illness with strength, purpose, and hope in God.

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Rare Resilience Alliance

Our mission is to build a world where no one facing a rare disease has to face it alone—through education, collaboration, and the healing strength of shared experiences.

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